Resources & Events
Here you can find book signings, release dates and other fun information about what Paulette will be doing in the up coming months. We will add information as soon as we know about it so please check back often.
Dr. Buchhalter offered priceless advice throughout our journey to help our child. The following is his advice to you should you find yourself in a seizure storm: If you have a child or any other loved one suffering from uncontrolled seizures, seek out and find the optimal care with the assistance of your local care providers, if possible. Frequently, the most comprehensive care for individuals with epilepsy is found in specialized pediatric and adult epilepsy centers. Sometimes the challenge is just getting there.
Suggested Reading
Seizures and Epilepsy in Childhood: A Guide for Parents. Written by Professor John M. Freeman MD, Dr. Eileen P.G. Vining MD, and Professor Diana J. Pillas. A John Hopkins Press Health Book.
The Ketogenic Diet: A Treatment For Children and Others With Epilepsy. Fourth Edition. Written by Dr. John Freeman, Dr. Eric Kossoff, Jennifer B. Freeman, Millicent T. Kelly, R.D. Published by Demos Medical Publishing, New York, N.Y.. 2007.
Keto Kid. Written by Dr. Deborah Snyder, DO, published by Demos Medical Publishing, New York, N.Y. 2007.
Epilepsy and the Ketogenic Diet. Edited by Carl E. Stafstrom, MD, PhD and Jong M. Rho, MD, published by Humana Press, Totowa, New Jersey. 2004.
Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A mother’s story of research and recovery. Written by Karen Seroussi published by Broadway Books, New York, 2002.
A Different Dream For My Child. Written by Jolene Philo, published by Discovery House, Grand Rapids, Michigan.
References & Services
The Charlie Foundation To Help Cure Pediatric Epilepsy
www.charliefoundation.org
The Charlie Foundation has a listing of providers who administer the ketogenic diet across the globe. Click on the hospital tab on the main page for a complete listing of those providers.
Matthews Friends
www.matthewsfriends.org
Helpline Numbers: 0788 4054811, or 0785 0062339
Email: eng@matthewsfriends.org
Information and support for parents of children who are on the ketogenic diet, or for parents who are thinking of starting their child on the diet.
Below are some of the Hospitals that provide excellent ketogenic care and autism support:
Phoenix Children’s Hospital, Comprehensive Epilepsy Program—Dr. Jeffrey Buchhalter
http://www.phoenixchildrens.com/medical-specialties/childrens_neuroscience_institute/programs-services/ped-epilepsy-program.html
602-546-1000
1919 E. Thomas Road
Phoenix, Arizona 85016
Mayo Clinic, Pediatric Epilepsy/Neurology Department—Dr. Elaine Wirrell and Dr. Katherine Nickels
http://www.mayoclinic.org/epilepsy/children.html
507-284-2511
200 First Street S.W.
Rochester, MN 55905
Johns Hopkins, Comprehensive Epilepsy Program—Dr. Eric Kossoff
www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/epilepsy/
410-955-2000
600 N. Wolfe Street
Baltimore, Maryland 21287
Massachusetts General Hospital in Boston
http://www.massgeneral.org
617-726-2000
55 Fruit Street
Boston, MA 02114
Children's Hospital Of Philadelphia—Dr. Christina Bergqvist
www.chop.edu
Center Boulevard & S 34th St
Philadelphia, PA 19104
(215) 590-1000
Montefiore Medical Center—Dr. Karen Balaban-Gil
www.montefiore.org
3415 Bainbridge Ave.
Bronx, New York 10467
Le Bonheur Children's Medical Center—Dr. James Wheless
http://www.methodisthealth.org/lebonheur/
(901) 287-5437
50 N. Dunlap Street
Memphis, TN 38103
Great Ormond Street Hospital in London—Dr. Helen Cross
www.ich.ucl.ac.uk
020 7405 9200
London, WC1N 3JH, United Kingdom
Epilepsy foundations and research foundations:
epilepsy action-UK
http://www.epilepsy.org.uk/info/ketogenic.html
Epilepsy Information Services
National Society for Epilepsy
Chesham Lane, Chalfont St. Peter, Bucks SL9 0RJ
Epilepsy helpline: 01494 601 400
American Epilepsy Association
http://www.epilepsyfoundation.org
On the main page of this site is an area to key in your zip code, it will bring you to your local
Epilepsy foundation.
http://cureepilepsy.org Cure is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness.
http://www.icepilepsy.org (ICE Alliance) Intractable Childhood Epilepsy
ICE is dedicated to improving the outcome for all treatment resistant epilepsies in childhood.
http://www.epilepsy.com The Epilepsy Therapy Project brings together financial resources, scientific insights and business expertise from leading academic and commercial industry participants.
Other resources:
http://www.myketocal.com by Nutricia North America
This website is a resource for dieticians and clinician’s interested in the ketogenic diet.
http://www.autismndi.com ANDI is the Autism Network for Dietary Intervention. ANDI provides help and support for families using a gluten and casein free diet in the treatment of autism and related developmental disabilities.